Posts
I mailed this out in the AM - THE SHOW totally rocks the world. the mp3 is on the billion dollar president website.
John Hockenberry's new NPR show debut's TODAY at 3 pm on WNYC FM out
of NYC, but there are definitely webcasts at http://www.wnyc.org, it's
on the FM stream at 93.9 at 3pm est, 7 pm repeated on the AM stream.
There will be archives made in mp3, so if you miss it, shoot me an
email privately, I'll figure out how to get you the mp3. (I'm
assuming they'd be smart enough to podcast it, but just in case)
The folks at WNYC have a blurb about "Billion Dollar Presidency" so I
figure the '08 race will be the focus. Yes, it's really happening,
Hock is back on the radio. It'll be awesome to hear him with his own
(Adaora Udoji co-hosts so it's not exactly HEAT 2.0, but still cool
enough to definitely check out)
I'm sure NPR, or more precisely PRI, has a pr team, but you all have
me so you don't miss out.
Back to figuring out grad school applications...yes plural. (msg to
l.z. - will email u soon)
oh - if you need a visual - http://www.youtube.com/watch?v=UBzrkwSCXp4
yeah - that's what MIT media lab fellows do - set up watercoolers at
washington sq park....hrmmm...
ck out http://www.billiondollarpresident.org/
peace -
Mike R.
PS - i'd love it if Mark Johnson would forward this, but a little
birdy told me he is somewhere in DC doing something with the
NSCIA...that's all i am saying!
Tuesday, November 06, 2007
Wednesday, October 10, 2007
the things that blow my mind...the new radiohead album and videotape
Videotape
When I'm at the pearly gates
This will be on my videotape, my videotape
Mephistopheles is just beneath
and he's reaching up to grab me
This is one for the good days
and i have it all here
In red, blue, green
Red, blue, green
You are my center
When i spin away
Out of control on videotape
On videotape
On videotape
On videotape
This is my way of saying goodbye
Because I can't do it face to face
I'm talking to you after it's too late
From my videotape
No matter what happens now
You shouldn't be afraid
Because I know today has been the most perfect day I've ever seen.
In my own sick, wierd and not exactly literal mind, i keep thinking of the victims of kevorkian making those videos, and while i totally disagree with assisted suicide, i think it is a beautiful song with haunting imagery. Radiohead is one of my favorite bands ever and i cannot tie this directly to disability rights, i can at least say it will be music for the daily revolution. Best album of 2007...without a doubt.
check it out at the official site.
Mike R.
When I'm at the pearly gates
This will be on my videotape, my videotape
Mephistopheles is just beneath
and he's reaching up to grab me
This is one for the good days
and i have it all here
In red, blue, green
Red, blue, green
You are my center
When i spin away
Out of control on videotape
On videotape
On videotape
On videotape
This is my way of saying goodbye
Because I can't do it face to face
I'm talking to you after it's too late
From my videotape
No matter what happens now
You shouldn't be afraid
Because I know today has been the most perfect day I've ever seen.
In my own sick, wierd and not exactly literal mind, i keep thinking of the victims of kevorkian making those videos, and while i totally disagree with assisted suicide, i think it is a beautiful song with haunting imagery. Radiohead is one of my favorite bands ever and i cannot tie this directly to disability rights, i can at least say it will be music for the daily revolution. Best album of 2007...without a doubt.
check it out at the official site.
Mike R.
Thursday, September 13, 2007
Over 120 Arrested When ADAPT Refuses to Sign Statement Supporting Institutions
Over 120 Arrested When ADAPT Refuses to Sign Statement Supporting Institutions
Chicago--- Today ADAPT confronted Council 31 of the American Federation of State, County and Municipal Employees (AFSCME) on their support of reopening the state’s Lincoln Developmental Center institution, and AFSCME’s refusal to endorse any legislation supporting home and community-based services for people with disabilities. AFSCME responded by asking ADAPT to sign a statement supporting institutions authored by AFSCME director Henry Bayer, and when that didn’t happen, Bayer had over 120 people arrested for blocking the doors, elevators and parking lot of the AFSCME building.
“It’s impossible to negotiate human and civil rights issues with people whose only concern is their own pockets…no matter how many people are warehoused and deprived of their liberty as a result,” said Mike Oxford, Kansas ADAPT Organizer. “They typed up a statement supporting institutions and asking for money, and then couldn’t understand why we didn’t want to sign it.”
ADAPT has met repeatedly with AFSCME leadership, receiving a commitment from Gerald McEntee, the union’s president, to sign on to legislation that supports home and community-based services and supports for people with disabilities and the elderly. That promise was never kept, and was one of the reasons ADAPT visited the Council 31 offices.
“For an organization that has its roots in the civil rights movement, their treatment of people with disabilities is even more despicable,” said Randy Alexander, Memphis ADAPT Organizer. “The union and its members make a lot of money by advocating to keep people with disabilities and older folks stuck in nursing homes and other institutions instead of being able to live in their own homes like other people. It’s unconscionable that the union fights for workers’ rights at the expense of our rights. In ADAPT, we know that you can’t have one without the other.”
The arrests at AFSCME concluded the week of ADAPT action in Chicago. The week began with a national Affordable, Accessible, Integrated Housing Forum, attended by federal officials who heard testimony from people with disabilities about the lack of adequate housing, and the discrimination they have experienced when trying to secure housing. The forum was followed by three days of action on the streets that included gaining a commitment from Governor Blagojevich for permanent closure of the Lincoln Developmental Center, and assuring ADAPT a seat at the table as Illinois enacts its Money Follow the Person demonstration. The next ADAPT action will be in Washington, D.C. April 26-May 2, 2008 when ADAPT celebrates its 25th anniversary.
###
for the MOST comprehensive ADAPT Chicago info - Not Dead Yet and EndeavorFreedom are getting the direct phone calls
Chicago--- Today ADAPT confronted Council 31 of the American Federation of State, County and Municipal Employees (AFSCME) on their support of reopening the state’s Lincoln Developmental Center institution, and AFSCME’s refusal to endorse any legislation supporting home and community-based services for people with disabilities. AFSCME responded by asking ADAPT to sign a statement supporting institutions authored by AFSCME director Henry Bayer, and when that didn’t happen, Bayer had over 120 people arrested for blocking the doors, elevators and parking lot of the AFSCME building.
“It’s impossible to negotiate human and civil rights issues with people whose only concern is their own pockets…no matter how many people are warehoused and deprived of their liberty as a result,” said Mike Oxford, Kansas ADAPT Organizer. “They typed up a statement supporting institutions and asking for money, and then couldn’t understand why we didn’t want to sign it.”
ADAPT has met repeatedly with AFSCME leadership, receiving a commitment from Gerald McEntee, the union’s president, to sign on to legislation that supports home and community-based services and supports for people with disabilities and the elderly. That promise was never kept, and was one of the reasons ADAPT visited the Council 31 offices.
“For an organization that has its roots in the civil rights movement, their treatment of people with disabilities is even more despicable,” said Randy Alexander, Memphis ADAPT Organizer. “The union and its members make a lot of money by advocating to keep people with disabilities and older folks stuck in nursing homes and other institutions instead of being able to live in their own homes like other people. It’s unconscionable that the union fights for workers’ rights at the expense of our rights. In ADAPT, we know that you can’t have one without the other.”
The arrests at AFSCME concluded the week of ADAPT action in Chicago. The week began with a national Affordable, Accessible, Integrated Housing Forum, attended by federal officials who heard testimony from people with disabilities about the lack of adequate housing, and the discrimination they have experienced when trying to secure housing. The forum was followed by three days of action on the streets that included gaining a commitment from Governor Blagojevich for permanent closure of the Lincoln Developmental Center, and assuring ADAPT a seat at the table as Illinois enacts its Money Follow the Person demonstration. The next ADAPT action will be in Washington, D.C. April 26-May 2, 2008 when ADAPT celebrates its 25th anniversary.
###
for the MOST comprehensive ADAPT Chicago info - Not Dead Yet and EndeavorFreedom are getting the direct phone calls
Tuesday, September 11, 2007
ADAPT TV Coverage
From Endeavor Freedom TV: (friends/ partners of ours...)
Find more videos like this on EndeavorFreedomTV
And it appears they have a blockade going on today as well.
Find more videos like this on EndeavorFreedomTV
And it appears they have a blockade going on today as well.
Monday, September 10, 2007
80 arrested at ADAPT Protest
80 ADAPT Disability Activists Arrested Attacking Segregation in Chicago
Chicago, IL--- More than 500 ADAPT activists from around the country
converged in Chicago September 8th-13th to take action against a
crisis in Illinois that is the poster child for a larger national
problem. The crisis is directly caused by a record of bad decisions
made by Illinois state officials, and the institutional bias built
into the way the nation’s long term care (LTC) system is funded.
Today activists made “house calls” to the American Medical
Association (AMA). Thus far, 80 have been arrested. Their demands are as
follows:
Demands are to
1. Endorse Community Choice Act and actively promote its passage (e.g.
include on AMA website and on advocacy agenda);
2. Work with ADAPT to develop an action plan to assure that people with
disabilities and seniors get REAL CHOICE in services/supports and are
able to live in most integrated setting. Provide membership with
continuing medical education programs about community-based
alternatives to institutionalization;
3. Require that AMA Board of Trustees and leadership divest
themselves of all financial interests in nursing facilities, etc.;
4. Develop AMA ethics policy that all AMA member MDs must full
disclose their financial interests in any facilities to their
patients when discussing issues, and not refer any patient to an LTC
facility in which they have any financial interest
ADAPT will assure that Gov. Blagojevich knows that his plans to
reopen a state institution for persons with developmental
disabilities and his lack of support for Money Follows the Person
legislation are actions of segregation and in violation of the U.S.
Supreme Court’s Olmstead decision. ADAPT will also challenge the
Illinois Congressional delegation to take a leadership role
nationally in eliminating the institutional bias so people with
disabilities and older Americans can live at home with dignity.
Currently, Illinois ranks 41st in the nation for providing the
community-based services that will allow disabled and older citizens
to stay in their own homes. Illinois’ long record of being in the
bottom ten states puts it among the worst when it comes to human
rights in general and disability rights in particular.
“It turns my stomach to know that my state, historically a home of
civil rights in America for people of color, is the same state that
is one of the worst civil rights performers in regard to people with
disabilities,” said Chicago native Larry Biondi, an organizer with
Chicago ADAPT
While in Chicago, ADAPT held a national housing forum that will
be attended by HUD Fair Housing Assistant Secretary Kim Kendrick, and
state and local officials. At the forum, ADAPT presented its
national housing agenda; took testimony from people across the
country who have had difficulty finding affordable, accessible,
integrated housing; and distribute information on pending
visitability legislation, and the redirection of HUD’s 811 Supportive
Housing program funds to projects that are integrated. Currently, the
811 program primarily funds segregated housing situations for people
with disabilities.
“As we have begun to make progress in getting people out of
institutions, and preventing people from being forced into
institutions, the lack of affordable, accessible, integrated housing
in typical neighborhoods has become glaringly apparent,” said Beto
Berrera, a member of Chicago ADAPT and a Chicago housing expert. “We
are hosting this national housing forum so that federal officials can
hear just how bad the situation is, and to gain their support in
working with us to right this wrong.”
Chicago, IL--- More than 500 ADAPT activists from around the country
converged in Chicago September 8th-13th to take action against a
crisis in Illinois that is the poster child for a larger national
problem. The crisis is directly caused by a record of bad decisions
made by Illinois state officials, and the institutional bias built
into the way the nation’s long term care (LTC) system is funded.
Today activists made “house calls” to the American Medical
Association (AMA). Thus far, 80 have been arrested. Their demands are as
follows:
Demands are to
1. Endorse Community Choice Act and actively promote its passage (e.g.
include on AMA website and on advocacy agenda);
2. Work with ADAPT to develop an action plan to assure that people with
disabilities and seniors get REAL CHOICE in services/supports and are
able to live in most integrated setting. Provide membership with
continuing medical education programs about community-based
alternatives to institutionalization;
3. Require that AMA Board of Trustees and leadership divest
themselves of all financial interests in nursing facilities, etc.;
4. Develop AMA ethics policy that all AMA member MDs must full
disclose their financial interests in any facilities to their
patients when discussing issues, and not refer any patient to an LTC
facility in which they have any financial interest
ADAPT will assure that Gov. Blagojevich knows that his plans to
reopen a state institution for persons with developmental
disabilities and his lack of support for Money Follows the Person
legislation are actions of segregation and in violation of the U.S.
Supreme Court’s Olmstead decision. ADAPT will also challenge the
Illinois Congressional delegation to take a leadership role
nationally in eliminating the institutional bias so people with
disabilities and older Americans can live at home with dignity.
Currently, Illinois ranks 41st in the nation for providing the
community-based services that will allow disabled and older citizens
to stay in their own homes. Illinois’ long record of being in the
bottom ten states puts it among the worst when it comes to human
rights in general and disability rights in particular.
“It turns my stomach to know that my state, historically a home of
civil rights in America for people of color, is the same state that
is one of the worst civil rights performers in regard to people with
disabilities,” said Chicago native Larry Biondi, an organizer with
Chicago ADAPT
While in Chicago, ADAPT held a national housing forum that will
be attended by HUD Fair Housing Assistant Secretary Kim Kendrick, and
state and local officials. At the forum, ADAPT presented its
national housing agenda; took testimony from people across the
country who have had difficulty finding affordable, accessible,
integrated housing; and distribute information on pending
visitability legislation, and the redirection of HUD’s 811 Supportive
Housing program funds to projects that are integrated. Currently, the
811 program primarily funds segregated housing situations for people
with disabilities.
“As we have begun to make progress in getting people out of
institutions, and preventing people from being forced into
institutions, the lack of affordable, accessible, integrated housing
in typical neighborhoods has become glaringly apparent,” said Beto
Berrera, a member of Chicago ADAPT and a Chicago housing expert. “We
are hosting this national housing forum so that federal officials can
hear just how bad the situation is, and to gain their support in
working with us to right this wrong.”
Tuesday, September 04, 2007
*I* Do not accept Jerry's apology
sorry glaad, as a disabled quuer male, i do NOT accept the apology. As a disabled filmmaker, activist, writer and (obvisiously) blogger, I find it funny that an ex-star loses his job on Grey's Anatomy for saying the word on the set, yet glaad is rushing to accept his apology. go to new mobility to look at the sexism he has not apologized for.
Wow, not like he walked out of a public book reading swearing up a storm because disabled people challenged him...
Monday, September 03, 2007
Sunday, July 29, 2007
testing the infrastucture for a possible web tv project
did this work, it does full screen and i have a ton of stuff to add to the net, but it looks like we may leave something like youtube entirely and maybe do some sort of disability related video content distribution. Yes, this does true full screen.
Thursday, May 31, 2007
Calling the Associated Press out on bullshit tactics
Disability Activists Blast AP For Badly Botched Kevorkian Survey, Reports Not Dead Yet
AP-Ipsos Poll on Kevorkian Inaccurate and Misleading
For Immediate Release
FOREST PARK, Ill./EWORLDWIRE/May 31, 2007 --- Disability activists from Not Dead Yet have demanded corrective action from the Associated Press after the release of poll data just three days prior to the parole of Jack Kevorkian. Kevorkian has served eight years on a second-degree murder conviction for his killing of Thomas Youk by lethal injection.
According to a widely-distributed AP story announcing the results, 53 percent of the respondents disagreed with Kevorkian's incarceration.
According to disability activists who have followed Kevorkian's career closely, the results are highly suspect since the question the public was given misled it in regard to the nature of Kevorkian's crime and the characteristics of his overall "body count."
According to the AP, the survey asked the following question:
"Do you think that Michigan doctor Jack Kevorkian should have been jailed for assisting terminally ill people end their own life, or not?"
"This question misinforms the respondent about the nature of the crime Kevorkian was convicted of and also mischaracterizes the health status of the majority of people who died at his hands. As anyone who watched the 60-Minutes telecast knows, Kevorkian directly injected lethal chemicals into Thomas Youk. This is not 'assistance'," says Stephen Drake, Not Dead Yet's research analyst. "Further, the word 'people' is paired with 'terminally ill', indicating that the majority of his body count consisted of people who were close to death." Beginning with the Detroit Free Press series 'The Suicide Machine' in 1997, there is overwhelming documentation that the majority of people who went to Kevorkian had non-lethal chronic conditions and disabilities.
Diane Coleman, president of Not Dead Yet, personally contacted Trevor Thompson, the AP's Manager of News Surveys, to demand a retraction and correction.
"Mr. Thompson eventually agreed the question didn't jive with the facts of Kevorkian's career or conviction but rejected any corrective action after consulting with the D.C. Bureau Chief, Sandy Johnson. Johnson claimed that the story about the poll was accurate, disregarding responsibility for contaminating the poll with a misleading question."
Carol Gill, Ph.D., agrees with the concerns of Not Dead Yet. "All good survey designers know that misleading questions produce invalid results. When participants are asked to respond to inaccurate and confusing items, the result is spoiled data. Unfortunately, this poll contained flawed questions. It's impossible to base sound conclusions on these results." Professor Gill is a research psychologist and associate professor at the University of Illinois at Chicago.
Drake adds that the refusal of Thompson and Johnson to address the misinformation in the poll is a violation of the AP's public "Statement on Values and Principles," which calls for swift and comprehensive corrective action when it publishes erroneous information.
"This is worse than the usual error," says Drake. "In this case, it created news in the form of a survey and then reported on that fabrication. Instead of simply reporting misinformation, AP has created the information in a way that superficially resembles scientific sampling. It has knowingly polluted the public discussion about an important public policy topic - and the organization is refusing to take responsibility for it."
AP-Ipsos Poll on Kevorkian Inaccurate and Misleading
For Immediate Release
FOREST PARK, Ill./EWORLDWIRE/May 31, 2007 --- Disability activists from Not Dead Yet have demanded corrective action from the Associated Press after the release of poll data just three days prior to the parole of Jack Kevorkian. Kevorkian has served eight years on a second-degree murder conviction for his killing of Thomas Youk by lethal injection.
According to a widely-distributed AP story announcing the results, 53 percent of the respondents disagreed with Kevorkian's incarceration.
According to disability activists who have followed Kevorkian's career closely, the results are highly suspect since the question the public was given misled it in regard to the nature of Kevorkian's crime and the characteristics of his overall "body count."
According to the AP, the survey asked the following question:
"Do you think that Michigan doctor Jack Kevorkian should have been jailed for assisting terminally ill people end their own life, or not?"
"This question misinforms the respondent about the nature of the crime Kevorkian was convicted of and also mischaracterizes the health status of the majority of people who died at his hands. As anyone who watched the 60-Minutes telecast knows, Kevorkian directly injected lethal chemicals into Thomas Youk. This is not 'assistance'," says Stephen Drake, Not Dead Yet's research analyst. "Further, the word 'people' is paired with 'terminally ill', indicating that the majority of his body count consisted of people who were close to death." Beginning with the Detroit Free Press series 'The Suicide Machine' in 1997, there is overwhelming documentation that the majority of people who went to Kevorkian had non-lethal chronic conditions and disabilities.
Diane Coleman, president of Not Dead Yet, personally contacted Trevor Thompson, the AP's Manager of News Surveys, to demand a retraction and correction.
"Mr. Thompson eventually agreed the question didn't jive with the facts of Kevorkian's career or conviction but rejected any corrective action after consulting with the D.C. Bureau Chief, Sandy Johnson. Johnson claimed that the story about the poll was accurate, disregarding responsibility for contaminating the poll with a misleading question."
Carol Gill, Ph.D., agrees with the concerns of Not Dead Yet. "All good survey designers know that misleading questions produce invalid results. When participants are asked to respond to inaccurate and confusing items, the result is spoiled data. Unfortunately, this poll contained flawed questions. It's impossible to base sound conclusions on these results." Professor Gill is a research psychologist and associate professor at the University of Illinois at Chicago.
Drake adds that the refusal of Thompson and Johnson to address the misinformation in the poll is a violation of the AP's public "Statement on Values and Principles," which calls for swift and comprehensive corrective action when it publishes erroneous information.
"This is worse than the usual error," says Drake. "In this case, it created news in the form of a survey and then reported on that fabrication. Instead of simply reporting misinformation, AP has created the information in a way that superficially resembles scientific sampling. It has knowingly polluted the public discussion about an important public policy topic - and the organization is refusing to take responsibility for it."
Monday, May 21, 2007
Dennis Kucinich Interview -5/19/07
Here is a 13 minute interview with Dennis Kucinich, I got two other events from this Saturday, however, I was using a rather low quality digital camera and I did *NO* editing on this interview as I wanted it up ASAP. It is very likely that this site will be getting new (to us!) video equipment soon. More updates soon!
Saturday, May 19, 2007
More on Human 2.0
Human 2.0 was absolutely amazing - An Excellent web cast archive is on the MIT Media Lab's site. I almost wish they'd throw it up on Google video so it can be downloaded to a PC easier. Too many amazing highlights - it was cool seeing the Hockenberry Family making a day of daddy's new job. It was my first time meeting Zoe and Olivia, they seemed really shy, but at the end of the day, Daddy's wheelchairs was the coolest play toy. Oops...I'm jumping ahead. The auditorium was extremely hot, but it was a gorgeous day out.
I'm trying to remember what presentation was my favorite and it's totally impossible to rank it. The speech between design guru Michael Graves and John Hockenberry was stellar. That and Oliver Sacks speech was the highlight of the morning. Well and the mid morning break when Hockenberry's wife said hi to me and knowingly asked "Did you whoop when John came out?" Umm Guilty... Yeah, when your friends email you saying "I so totally heard you on the web cast." Look okay in my mind,it was like a concert and it even got Frank Moss stoked. It wasn't the worst thing I've ever done.
Afternoon was spent trying to figure out if my digital camera was dead (it wasn't) but my video is horrid compared to the media lab web cast. I was also agonizing how to figure out how to introduce myself to Amanda Baggs, and sent emails to mutual acquaintances, I was not going to bug her, since she has all the CNN lovers bugging her and like, that WAS cool, but her website against Autism Speaks was so much better. I ended up waiting for Hockenberry and so was she, and we ended up talking for a while and she is such an amazing writer and just has such a grasp on trying issues together or describing sensations or really good conferences. Well, she writes incredibly well and she is very verbose. Do a Google search on her name to find her blog. There is literally hundreds of posts and it is so good, like - it makes this stuff look very, VERY, lame.
The stuff from Hugh Herr about prosthetics and amputees and the strongest ankles in the world was really cool. He also seemed cool when I chatted with him after the event.
But the high point, well there were several, but Dan Ellby totally rocked the house down. Watch the last twenty minutes of the web cast for his song. He needs an Ep on Itunes, trying to describe his work lends me to say ambient electronica, but with orchestetration like mu-ziq or warp records stuff. As Dan finished, Hockenberry rolled out on a modified Segway that had a seat, and Hugh Herr climbed this Extremely DIFFICULT rock wall as a end. it reminded me of Moby's Play Tour encore of "Thousands", but with much more crip powered geekiness.
The end of the conference led to wierd hor d'overs, and a catered full bar. And someone who let ME, spastic dorkiness, try a segway. The Segway was so completely cool. I ski, I have rode a half pipe on a skateboard and bike, and the segway was just so totally...COOL. Hockenberry said I had the biggest smile on my face, and given the drama the week had provided (wierd family issues), that was a definite upgrade for me.
(i really should post that photo of me on the segway but it is late...)
Interview with a Presidental candidate coming soon
Mike R.
I'm trying to remember what presentation was my favorite and it's totally impossible to rank it. The speech between design guru Michael Graves and John Hockenberry was stellar. That and Oliver Sacks speech was the highlight of the morning. Well and the mid morning break when Hockenberry's wife said hi to me and knowingly asked "Did you whoop when John came out?" Umm Guilty... Yeah, when your friends email you saying "I so totally heard you on the web cast." Look okay in my mind,it was like a concert and it even got Frank Moss stoked. It wasn't the worst thing I've ever done.
Afternoon was spent trying to figure out if my digital camera was dead (it wasn't) but my video is horrid compared to the media lab web cast. I was also agonizing how to figure out how to introduce myself to Amanda Baggs, and sent emails to mutual acquaintances, I was not going to bug her, since she has all the CNN lovers bugging her and like, that WAS cool, but her website against Autism Speaks was so much better. I ended up waiting for Hockenberry and so was she, and we ended up talking for a while and she is such an amazing writer and just has such a grasp on trying issues together or describing sensations or really good conferences. Well, she writes incredibly well and she is very verbose. Do a Google search on her name to find her blog. There is literally hundreds of posts and it is so good, like - it makes this stuff look very, VERY, lame.
The stuff from Hugh Herr about prosthetics and amputees and the strongest ankles in the world was really cool. He also seemed cool when I chatted with him after the event.
But the high point, well there were several, but Dan Ellby totally rocked the house down. Watch the last twenty minutes of the web cast for his song. He needs an Ep on Itunes, trying to describe his work lends me to say ambient electronica, but with orchestetration like mu-ziq or warp records stuff. As Dan finished, Hockenberry rolled out on a modified Segway that had a seat, and Hugh Herr climbed this Extremely DIFFICULT rock wall as a end. it reminded me of Moby's Play Tour encore of "Thousands", but with much more crip powered geekiness.
The end of the conference led to wierd hor d'overs, and a catered full bar. And someone who let ME, spastic dorkiness, try a segway. The Segway was so completely cool. I ski, I have rode a half pipe on a skateboard and bike, and the segway was just so totally...COOL. Hockenberry said I had the biggest smile on my face, and given the drama the week had provided (wierd family issues), that was a definite upgrade for me.
(i really should post that photo of me on the segway but it is late...)
Interview with a Presidental candidate coming soon
Mike R.
Wednesday, May 09, 2007
Human 2.0 blogging
first a required photo of John Hockenberry
ok, Loads of people here - michael graves, Amanda Baggs, Oliver Sachs, right now Bill Mitchell is speaking. It is a great conference, tho it is extremely hot in the auditoium. MIT is streaming it online at http://www.media.mit.edu/.
 |
| From images-2007 |
ok, Loads of people here - michael graves, Amanda Baggs, Oliver Sachs, right now Bill Mitchell is speaking. It is a great conference, tho it is extremely hot in the auditoium. MIT is streaming it online at http://www.media.mit.edu/.
Wednesday, March 14, 2007
new pdf of our day planner "Access '07"
I found a nifty program called click books which makes printiable pdf versions of books far easier. The trial version leaves an annoying stamp - but it is still actually much easier to print than the one that is still available to download on lulu.com. We will be doing a 2008 edition (it will be done by early October, so it can be gifted and be much more "accessable" to people. An electronic version will be done soon - it's been a wild ride (of hospital visits, procedures, and healing then other parts of my body going into horrid pain. then healing, etc.) since the beginning of the year. Hopefully the early Daylight Savings Time will bring a bit more energy, cuz i really wanna ride my bike soon.
Download Access Here.
Mike R.
ps - make yer own cover!!!!
Download Access Here.
Mike R.
ps - make yer own cover!!!!
Tuesday, January 09, 2007
National day of action over the ASHLEY Treatment.
CTION ALERT
Fax/E-mail/Phone Campaign
Feminist Response in Disability Activism (FRIDA), with the support of Chicago ADAPT, the national ADAPT community and Not Dead Yet, invites you to speak out about the “Ashley Treatment.”
Our Targets: Seattle Children’s Hospital staff involved in the case of nine-year-old Ashley’s growth attenuation and sterilization, as well as Melinda Gates, chair of the Seattle Children’s Hospital fundraising committee and Susan Macek, Director of Communications for Seattle Children’s Hospital.
Why: To oppose their permission of what is now known as the “Ashley Treatment,” and to condemn further permission of such “treatments” for children with disabilities whose lives are not otherwise at risk.
When: Tuesday, January 9, 2007, starting at 9 am in your time zone.
Contact Info:
Dr. Douglas Diekema
Phone: 206-987-2380
B-5520 – Emergency Medicine
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Douglas.diekema@seattlechildrens.org
Dr. Daniel F. Gunther
Phone: (206) 987-2380
M1-3 – Endocrinology
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Dan.gunther@seattlechildrens.org
Melinda Gates
PO Box 23350
Seattle, WA 98102
Phone: (206) 709-3100
Fax: (206) 709-3252
Email: info@gatesfoundation.org
Susan Macek
Director of Communications, Seattle Children’s Hospital
Phone: (206) 987-5201
Pager: (206) 469-6310
E-mail: susan.macek@seattlechildrens.org
Ashley is a nine-year-old with a severe cognitive disability. In order to keep her small and more easily cared for by her family, doctors at Seattle Children’s Hospital are having her undergo hormone “therapy” to stunt her growth. In addition, they surgically removed her breast buds, uterus and appendix. The “Ashley Treatment,” as her parents call it, is a medical “fix” to serious social problems we face in America today. The first of these problems is a lack of quality home-based services for people with disabilities. The second is the social attitude that people with disabilities are less than human and therefore fair game for experimentation. The third is a lack of understanding of disability vs. illness: as Joe Hall of South Carolina has stated, “When I was born my parents knew that I would never walk, but they would have never thought it would be acceptable to cut my legs off.”
To review Ashley’s parents’ blog, please see:
http://ashleytreatment.spaces.live.com/
To review one of the original articles as reported by the BBC, please see:
http://news.bbc.co.uk/go/pr/fr/-/2/hi/americas/6229799.stm
We need to let the Seattle Children’s Hospital and its fundraising chairperson know that the Ashley Treatment has not gone unnoticed by those of us who live with disabilities.
For more information, AND TO KEEP US POSTED OF YOUR “ASHLEY TREATMENT” ACTIVITIES, please call Sharon Lamp at (847) 803-3258 or e-mail Amber Smock at ambity@aol.com.
Fax/E-mail/Phone Campaign
Feminist Response in Disability Activism (FRIDA), with the support of Chicago ADAPT, the national ADAPT community and Not Dead Yet, invites you to speak out about the “Ashley Treatment.”
Our Targets: Seattle Children’s Hospital staff involved in the case of nine-year-old Ashley’s growth attenuation and sterilization, as well as Melinda Gates, chair of the Seattle Children’s Hospital fundraising committee and Susan Macek, Director of Communications for Seattle Children’s Hospital.
Why: To oppose their permission of what is now known as the “Ashley Treatment,” and to condemn further permission of such “treatments” for children with disabilities whose lives are not otherwise at risk.
When: Tuesday, January 9, 2007, starting at 9 am in your time zone.
Contact Info:
Dr. Douglas Diekema
Phone: 206-987-2380
B-5520 – Emergency Medicine
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Douglas.diekema@seattlechildrens.org
Dr. Daniel F. Gunther
Phone: (206) 987-2380
M1-3 – Endocrinology
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Dan.gunther@seattlechildrens.org
Melinda Gates
PO Box 23350
Seattle, WA 98102
Phone: (206) 709-3100
Fax: (206) 709-3252
Email: info@gatesfoundation.org
Susan Macek
Director of Communications, Seattle Children’s Hospital
Phone: (206) 987-5201
Pager: (206) 469-6310
E-mail: susan.macek@seattlechildrens.org
Ashley is a nine-year-old with a severe cognitive disability. In order to keep her small and more easily cared for by her family, doctors at Seattle Children’s Hospital are having her undergo hormone “therapy” to stunt her growth. In addition, they surgically removed her breast buds, uterus and appendix. The “Ashley Treatment,” as her parents call it, is a medical “fix” to serious social problems we face in America today. The first of these problems is a lack of quality home-based services for people with disabilities. The second is the social attitude that people with disabilities are less than human and therefore fair game for experimentation. The third is a lack of understanding of disability vs. illness: as Joe Hall of South Carolina has stated, “When I was born my parents knew that I would never walk, but they would have never thought it would be acceptable to cut my legs off.”
To review Ashley’s parents’ blog, please see:
http://ashleytreatment.spaces.live.com/
To review one of the original articles as reported by the BBC, please see:
http://news.bbc.co.uk/go/pr/fr/-/2/hi/americas/6229799.stm
We need to let the Seattle Children’s Hospital and its fundraising chairperson know that the Ashley Treatment has not gone unnoticed by those of us who live with disabilities.
For more information, AND TO KEEP US POSTED OF YOUR “ASHLEY TREATMENT” ACTIVITIES, please call Sharon Lamp at (847) 803-3258 or e-mail Amber Smock at ambity@aol.com.
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